Narrative Matters - The Power of the Personal Essay in Health Policy 2e

Foreword, by Abraham Verghese, M.D. ix Preface: About This Book xiii List of Contributors xvii CHAPTER 1 WRITING TO CHANGE THINGS: ESSAYS ON THE POLICY NARRATIVE 1(20) Me and the System: The Personal Essay and Health Policy FITZHUGH MULLAN 2(6) Using and Misusing Anecdote in Policy Making JOHN E. MCDONOUGH 8(6) Out of the Closet and into the Legislature: Breast Cancer Stories BARBARA F. SHARF 14(7) CHAPTER 2 DOLLARS AND SENSE: HARD FINANCIAL REALITIES 21(44) Gouging the Medically Uninsured: A Tale of Two Bills IRENE M. WIELAWSKI 22(6) Tea, Biscuits, and Health Care Prioritizing MARTHE R. GOLD 28(6) Doctors Have Patients, Governors Have Citizens RICHARD D. LAMM 34(7) Hooked on Neonatology JOHN D. LANTOS 41(7) Here Comes Trouble KAREN ROBERTS 48(4) Shopping for Long-Term Care DEBORAH STONE 52(6) On Being a Grantmaker MICHAEL LERNER 58(7) CHAPTER 3 BEARING WITNESS: PATIENTS' STORIES 65(40) iDespierta! DANIEL J. DERKSEN 66(5) Pizza Ship W. RICHARD BOYTE 71(2) Where's David? JANETTE H. KURIE 73(6) Maria MAHLON JOHNSON 79(6) Voices from the Clinic: AIDS Then and Now ABIGAIL ZUGER 85(6) The Yellow Baby FITZHUGH MULLAN 91(6) Blind Faith and Choice RHIANNON TUDOR EDWARDS 97(8) CHAPTER 4 THE MADDENING SYSTEM: FRUSTRATIONS AND SOLUTIONS 105(36) Of Wheelchairs and Managed Care ANDREW I. BATAVIA 106(6) Getting the Elderly Their Due DAVID CARLINER 112(4) My Mother and the Medical Care Ad-hoc-racy DAVID M. LAWRENCE 116(5) Tin-Cup Medicine FITZHUGH MULLAN 121(6) Acquainted with the Night PAUL RAEBURN 127(6) Learning Genetics SHARON F. TERRY 133(8) CHAPTER 5 TROUBLE IN THE RANKS: PROFESSIONAL PROBLEMS 141(28) Accountable but Powerless BARRY ADAMS 142(6) Leaving Nursing RAY BINGHAM 148(6) Dolores DANIEL J. DERKSEN 154(7) Attending Death with Dignity SHARON LADUKE 161(8) CHAPTER 6 DRUG RESISTANCE: BATTLING UNDUE INFLUENCE 169(16) A Matter of Influence HOWARD BRODY 170(3) As Drug Marketing Pays Off, My Mother Pays Up JANET R. GILSDORF 173(5) No Free Lunch PAUL JUNG 178(7) CHAPTER DISPARITY DILEMMAS: STORIES ON RACE AND ETHNICITY 185(38) Out of the Shadow NEIL S. CALMAN 186(5) Subcutaneous Scars VANESSA NORTHINGTON GAMBLE 191(6) No Come Nada RICHARD S. GARCIA 197(5) Concordance ALOK KHORANA 202(7) La Promotora DARRYL M. WILLIAMS 209(6) Immigration Pediatrics FITZHUGH MULLAN 215(8) CHAPTER 8 VALUES AND CHOICE: STORIES OF PRACTICAL ETHICS 223(64) Casey's Legacy W. RICHARD BOYTE 224(5) No One Needs to Know NEIL S. CALMAN 229(6) At the End of a Day ALOK KHORANA 235(6) Life but No Limb: The Aftermath of Medical Error CAROL LEVINE 241(6) Incidental Illness DANIELLE OFRI 247(6) The Rest Is Silence MICHAEL ROWE 253(5) DNAbling Parents LISA SWEETINGHAM 258(6) What Are We Going to Do with Dad? JERALD WINAKUR 264(10) Kidneys and the Kindness of Strangers DAVID STEINBERG 274(7) The Curtain W. RICHARD BOYTE 281(6) Index 287